- Advanced Nursing www.advancednursing.com You'll find the optimal balance of skilled care, thoughtful supervision and considered warmth for mom (or dad's) care here at advancednursing.com
- Alzheimer’s Association www.alz.org This is the National Alzheimer’s Association’s website. It serves as a clearinghouse for information related to Alzheimer’s. It has a wealth of information and many links to other informative sites including educational resources and online support groups. I highly recommend visiting this site.
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- Alzheimer's Disease Education and Referral ADEAR (800) 438-4380 P.O. Box Silver Springs, MD 20907-8250. The ADEAR Center is a service of the National Institute on Aging (NIA). The NIA is one of the National Institutes of Health, under the U.S. Department of Health and Human Services. http://www.alzheimers.org/adear
- Alzheimer Information This site provides many links to other Alzheimer sites and to support for caregivers. www.elderlyplace.com
- Arts and Healing Network FAX: (415) 771-3696, 3450 Sacramento St. Box 612, San Francisco, CA 94118 The Arts and Healing Network is "dedicated to celebrating the connection between arts and healing." The focus of their website is to serves as an international resource and exchange for anyone interested in the healing potential of art, especially environmentalists, social activists, artists, health care practitioners, and those challenged by illness. http://www.artheals.org
- Survivors Art Foundation - Healing through Art ... Art through Healing
Survivors Art Foundation P.O. Box 383 Westhampton, NY 11977
This non-profit organization is dedicated to encourage healing through the arts and committed to empowering Visual, Literary and Performing Artists with effective expressive outlets, via Web Gallery, National Exhibitions, Outreach Programs and Publications. Our goals are to provide entertainment, education, exposure to the arts, and raising public awareness, while mainstreaming trauma survivors with physical and mental disabilities into the arts.
- Allergy and Asthma Network/Mothers of Asthmatics, Inc. AANMA (800) 878-4403
3554 Chain Bridge Road, Suite 200 Fairfax, VA 22030-2709 http://www.aanma.org/
- Attention Deficit Disorder Children and Adults with Attention Deficit Disorders C.H.A.D.D. (800) 233-4050 499 Northwest 70th Avenue, Suite 101 Plantation, Florida 33317 Publishes brochures and a quarterly newsletter on the topic. Also Maintains a support group network for adults with ADD and parents of children with ADD. http://www.chadd.org
- Autism Society of America ( 800)-3AUTISM (301)-657-0881 7910 Woodmont Ave, Suite 650, Bethesda, MD 20814-3015 The mission of the Autism Society of America is to promote lifelong access and opportunities for persons within the autism spectrum and their families, to be fully included, participating members of their communities through advocacy, public awareness, education, and research related to autism. http://www.autism-society.org/
- The Susan G. Komen Breast Cancer Foundation (800) IM-AWARE Volunteers work work through local chapters and Race for the Cure events to further the Foundation's mission of eradicating breast cancer. http://www.komen.org/
- American Cancer Society (800) ACS-2345 Central to the cancer-fighting mission of the American Cancer Society’s commitment to provide the public with the most current information on: cancer, including risk factors, treatment methods, prevention and detection guidelines; the latest cancer research programs; ACS programs and services that help cancer patients and their families; public health policies and ACS advocacy efforts; volunteer and giving opportunities; races and programs.
The site also has a central listing for finding the local American Cancer Society Chapter. http://www.cancer.org
- American Lung Association (ALA) (212) 315-8748 1740 Broadway New York, New York 10010
- Cystic Fibrosis Foundation (800) FIGHT-CF 6931 Arlington Road Bethesda, MD 20814 The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. A variety of information available about the disease and local chapters. http://www.cff.org/
- American Diabetes Association (800) 232-3472 http://www.diabetes.org/for-parents-and-kids.jsp For an extensive review of the internet sites pertaining to diabetes.
http://www.diabetes.org/InternetResources.htm . For a quiz to determine if you are at risk http://www.diabetes.org/alert/default1.htm
- National Multiple Sclerosis Society 1-800-Fight-MS (1-800-344-4867) 733 Third Avenue, New York, NY 10017 List of support groups and educational materials http://www.nmss.org
- Muscular Dystrophy Association, USA (800) 572-1717 3300 East Sunrise Dr. Tuscon, AZ 85718 http://www.mdausa.org/
- American Red Cross Resources available on Armed Forces Emergency Services, Biomedical Services, Disaster Services, Health and Safety Services, International Services, Youth Involvement and Volunteering http://www.mdausa.org/
- Compassionate Touch® (510) 935-3906 20 Swan Court Walnut Creek, CA 94596
This touch therapy was created by a massage therapist as a method for interacting with those in the later stages of life. It is a modified massage technique, softer, since much of the traditional therapies can harm elderly skin. It also is an excellent therapy for those who are terminally-ill and has had success with reaching Alzheimer's patients. http://www.journeyofhearts.org/compassionatetouch
- The Candlelighters Childhood Cancer Foundation® (CCCF) (800) 366-2223 was founded in 1970 by concerned parents of children with cancer, for parents of children and adolescents with cancer.
- Caregivers http://hammer.prohosting.com/bravekids.org/ This web site was designed to assist Adult Caregivers who have loved ones in different stages of Dementia and Alzheimer's.
- Caregivers 911 www.caregivers911.com Marlene Sherman and Jim Sherman. This site contains many useful books devoted to caregiving subjects.
- Caregiver's Army www.caregiversarmy.com The Alzheimer's Disease Caregiver's Army has launched a worldwide petition drive in support of finding a cure for Alzheimer's Disease, AD Caregivers and their loved ones suffering from this terrible disease.
- Care Tender www.caretender.com Vicki McCarty. This site provides a caregiver's newsletter, giving inspiration and plenty of helpful suggestions and caregiving tips. You'll find suggestions for other related links here too.
- Caring in Remembered Ways http://heartsongbooks.com/remways.htmlThis personal, practical book honors ways of caring the heart knows--deep-seeing ways that go beyond courtesy and kindness and empathy to the living compassion that embraces all the rest. It is fitting for professional/volunteer/family caregivers of every kind--all of us who want to nourish each other in ways we can feel, no matter the circumstances of our lives.
- The Elderly Place www.geocities.com/~elderly-place/ or www.suite101.com/welcome.cfm/elderly_caregiving The Elderly Place is full of caregiving tips and resources for caregivers as well. Lots of links to helpful sites. It's a must-see. Marci's e-mail address is email@example.com
- Grief Recovery Online (founded by) Widows & Widowers GROWW was founded by a group of widows and widowers who understand that when a spouse dies, our husband or wife, was also a son or a daughter, an aunt or an uncle, a brother or a sister, a grandmother or a grandfather, a mother or a father and finally a friend. The primary function and expertise of GROWW is the development of bereavement support groups online in the format of “chat rooms," and promotes Grief Recovery for ALL Bereaved. http://www.groww.com/
- Growth House (Hospice-Bereavement-HIV Links-Free Home Pages) http://www.growthhouse.org
B O O K S A N D P E R I O D I C A L S
- TCAP www.caregiversadvisorypanel.com Improving the lives of family caregivers through market research by conveying their wants, needs and opinions to health care product manufacturers, service providers and policy makers.
Wendy Lustbader and Nancy R. Hooyman New York, 1994, The Free Press. I found this book packed with information on all aspects of elder care and the aging process. Good practical answers to difficult questions.
- The 36 Hour Day: A Family Guide to Caring for
Persons With Alzheimers Disease, Related Dementing Illness, and
Memory Loss in Later Life Nancy Mace and Peter Rabins VBaltimore, 1991, John Hopkins University Press. I found this book to be a life saver. It covers a wealth of critical topics, including caregiving issues and family dynamics. I strongly urge you to read it.
- Taking Care of Aging Family Members, A Practical Guide
The Loss of Self: A Family Resource for the Care of Alzheimers
Disease and Related Disorders, Donna Cohen and Carl Eisdorfer New York, 1986, W.W. Norton. This book has good practical advice on handling the changing behaviors of the Alzheimer’s patient and information on locating resources for help.
Hannah’s Heirs: The Quest For The Genetic Origins Of Alzheimer’s Disease, Daniel Pollen, M.D. New York, 1993, Oxford Press. Dr. Pollen shares the genetic research that explains what predisposes some families with the genes related to Alzheimer’s Disease. It is a fascinating story about one family’s research into the medical records of 3 generations in their fight to narrow down the causes of Alzheimer’s.
ADVANCES : National Alzheimers Association
newsletter, This is an excellent source of up-to-date information. Articles are featured on the latest medical research and advances. Caregiving tips are included as well as resources for caregivers. Consistently informative. I would highly recommend subscribing. Contact the Alzheimer’s Association. See address under Organizations.
O R G A N I Z A T I O N S
The Alzheimer’s Association919 North Michigan Avenue, Suite 1000, Chicago, Illinois 60611-1676 (800)272-3900 ( www.alz.org )
Alzheimers Disease Education and Referral
Center P.O. Box 8250, Silver Spring, Maryland 20907 (303) 495-3311
American Association for Retired Persons 601 E. Street, N.W., Fulfillment Department, Washington, D.C. 20049 (202) 434-2277 Excellent source for information related to seniors. Pamphlets are available on many subjects.
Elder Care Locator (800) 677-1116. Helps you find community resources available for seniors throughout the United States.
National Institute on Adult Day Care (800) 424-9046 Provides a directory of adult day services available throughout the U.S.
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